Movin' on up

(Picture is Mom and Eve...)

Lily is moving up in the world! Today they decided to change her feeds to every three hours. Right now, she is up to 23 mL every three hours and they will up her 2 mL every other feed. She needs to get to 45 mL every three hours, I believe, so she is approaching that! Slowly, but surely. And it appears she is tolerating the feeds and starting to poop on her own. The nurse asked the doctors during rounds if they would consider reducing her suppositories from one every 12 hours to one every 24 hours because she is starting to go on her own and she is taking meds to increase her bowel motility. They will discuss it tomorrow and decide then. Lily now weighs about 5 pounds 2 ounces. She is looking a LOT bigger to me! I fed her two bottles the day before yesterday and one yesterday. Tonight she was a little sleepy for her father, so they tube fed her the rest of the bottle. We like to get her to bottle feed because "digestion starts in the mouth." Tomorrow I'm going to try to be up there for a few of her and a few of Eve's feeds.



(Picture is of Mom and Lily)

Today, I fed Eve at 2 p.m. and she took the whole bottle pretty fast, without desatting and without any bradycardias. THEN, to my immense surprise, she REMAINED awake! She was looking around, looking at me, playing with my fingers...it was so awesome I wanted to cry. Good cry, obviously. I finally had to put her back to get a chance to see Lily before shift change and she was STILL wide awake when I put her back in. She's still clinging to her 1/40th of a liter of o2, but I'm hoping if she continues to sat well during her feeds and during her bed times, that they might try weaning her off of that. As soon as she is able to maintain her temp, take all feeds by mouth and maintain o2 sats without o2 help, she can COME HOME. Lily needs to get up to full feeds, get off her PICC line, take all feeds by mouth and have proper input and output before she can come home. She doesnt have desats when she eats, as a matter of fact they took off her o2 saturation monitor. Other than, that I have no other news. We haven't heard anything about LIly's vertebra. The nurse last night told us her kidney problem she had at birth was hyrdo something...essentially water build up in the kidney and ureter. But the urologist labeled it as "mild" in the renal studies he did and said her renal ultrasound was "excellent". I can live with those descriptive words. NOW, I just want to know if her vertebra will need management and I'm hoping to God it won't. She will definitely have an orthopaedic specialist check her out before discharge and said person will likely have an information consult with Eric and I to talk about her situation. The nurse tonight said ti would probably be informational, telling us to watch for this that or the other thing. But we'll have to wait and see. MORE WAITING...ugh, I hate waiting.

I'm going to try to upload more pictures now!!!